Tuesday, April 27, 2010


Before I formed you in the womb I knew you,
before you were born I dedicated you,
a prophet to the nations I appointed you. (Jer 1:5)

Sixteen years ago today our son, Eddie, was given to us as a wondrous gift. It wasn't immediately apparent that Eddie had special needs. As a matter of fact, he wasn't given the diagnosis of West Syndrome -- a diagnosis that is rare and rather devastating -- until he was 6 mos. old. That is the typical age of onset of this particular syndrome. I won't beleaguer you with the details of his diagnosis but to say it was an earth shattering event when we were given the news that Eddie would most likely not sit up on his own, talk, walk, be social, feed himself, in essence, have much of a life at all. The text books all pointed in this direction, and the doctors believed it, too -- except for a couple of them who had hope.

The middle of the story -- from 6 mos to age 16 yrs. -- holds many wonderful, nerve-wracking, awe inspiring events. I will cut to the chase here: Eddie has been and will continue to be our sanctification. It is through this amazing young man that we see things in the world as not impossible but, possible because we know that through God all things ARE possible. It is because of his birth, his brain injury and his never quit attitude that we have grown closer to God.

And, so on this day, 16 wonderful years later, I offer a prayer of thanksgiving to God for the gift of Eddie, for the gift of all my children, both born and unborn. Each of them, in their own way draws us closer to Christ. Eddie just happened to be the "crossroads of faith" for us -- the reminder that there is a choice: you can despair, or you can trust. Just looking at his beautiful face and seeing the wonder in Christian's eyes when we brought Eddie home allowed us to choose to trust and not give up.

Eddie is so much more than anyone could have ever imagined. He rolled over at 10 mos. old; he sat up at 1 1/2 yrs old; he started to feed himself at 2 1/2 yrs. old; he walked at 6 1/2 years old. None of those things were even on the table when we were given the prognosis. I'm so glad we decided to trust and never give up! Hope and love are amazing graces given to us by God -- you can never tell what wonders they provide. And, Eddie uses the grace he has been given to change lives, to live hope and to challenge a world to respect God and the gift of life.

So, HAPPY BIRTHDAY young man! We love you very much, Edbear! You are everything and more than what we hoped for. God bless you with many more happy years.


Mom, Dad, Christian, Meggie, Annie, Gracie & Lainie!!


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